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Does anyone here have or know someone with MS or Lyme Disease?

Posted:
Thu Sep 06, 2007 10:59 pm
by Moonbase2
If so, can you tell me a little about it? I have a lot of symptoms consistent with both, though moreso with multiple sclerosis. I'm being tested for Lyme Disease and am awaiting a neurology appt. It's gotten progressively worse over the past two weeks and it's starting to become really bothersome. My entire face is numb right now, and that's a brand new symptom.

Thanks. I've had a bad month, health-wise.

Posted:
Fri Sep 07, 2007 5:49 am
by Dead Metal
Oh man that sounds terabil!
I don't know what to say.

Posted:
Fri Sep 07, 2007 6:06 am
by SoundStang
I PM'd you... My ex-wife has had MS for over 15 yrs now. And I had Guillian Barre' Syndrome (Which also mimics MS)
EDIT: It was originally thought I had a pinched nerve also when I lost feeling to my hands and legs. Here is the link to the GBS website. http://www.gbsfi.com/ I know what you are going through.. Hang in there

Posted:
Fri Sep 07, 2007 8:26 am
by DREWCIFER
I had a dog that got Lyme's. He lost the use of his back legs and went blind.
However, he lived for about 10 yrs, so that's good.


Posted:
Fri Sep 07, 2007 10:32 am
by Moonbase2
DJDrew&ScoobyDoo wrote:I had a dog that got Lyme's. He lost the use of his back legs and went blind.
However, he lived for about 10 yrs, so that's good.

Uh...thanks for the encouragement? I doubt it's Lyme's anyway.

Posted:
Fri Sep 07, 2007 10:41 am
by Jeep?
Ten dog years is good, though.

Posted:
Fri Sep 07, 2007 10:47 am
by Moonbase2
I'm sorry if I'm not finding this funny. Good for the dog. I'm not a dog.

Posted:
Fri Sep 07, 2007 10:59 am
by Jeep?
Sorry, I guess that was pretty irreverant. Good luck with your test results, I hope it turns out to be nothing serious.

Posted:
Fri Sep 07, 2007 11:15 am
by Moonbase2
Jesus Prime wrote:Sorry, I guess that was pretty irreverant. Good luck with your test results, I hope it turns out to be nothing serious.
Thanks. I hope it's something as simple as a pinched nerve, but I doubt it. Also, I'm not looking for sympathy or pity or anything. I just want to talk to people with these kind of experiences. The dog example doesn't really apply to me...well, maybe on some days.

Posted:
Fri Sep 07, 2007 11:25 am
by Senor Hugo
My cousin's fiance got MS, but I don't know much about it.
Hope this helps, and hope everything turns out ok with the tests.
http://en.wikipedia.org/wiki/Multiple_Sclerosis

Posted:
Fri Sep 07, 2007 11:44 am
by Spoon
lol, dogs.

Posted:
Fri Sep 07, 2007 12:18 pm
by Evolution Prime
Moonbase2 wrote:Jesus Prime wrote:Sorry, I guess that was pretty irreverant. Good luck with your test results, I hope it turns out to be nothing serious.
Thanks. I hope it's something as simple as a pinched nerve, but I doubt it. Also, I'm not looking for sympathy or pity or anything. I just want to talk to people with these kind of experiences. The dog example doesn't really apply to me...well, maybe on some days.
My ex-wife had similar symptoms. Half of her face went numb. She lost feeling in her legs when if she was walking she would fall. She had headaches and things as well. They had her tested for Lymes Disease. They also think it may have been bilateral Bells Palsy. These were also done by Navy and Army doctors and I don't trust them as far as I can throw them. One of the reasons I got out of the Navy. I don't care if its free care, if it isn't good care its not worth it.

Posted:
Fri Sep 07, 2007 12:20 pm
by Moonbase2
The good thing for me at least is the army will send me to a competent hospital, hopefully in Nashville. My son had an MRI at Vanderbilt Children's hospital and it was NICE. Maybe the adult version is as well. Unfortunately, I might have to wait a while. I really hope I can extradite an appointment. I really don't know if I can wait a month or so, at the rate it is progressing.

Posted:
Fri Sep 07, 2007 12:30 pm
by Evolution Prime
Yeah they didn't send her to any good hospitals. Just the navy one in Bremerton, WA and the army one in Tacoma. I hope they find out what it is and fast. I know how bad it can be to wait.

Posted:
Fri Sep 07, 2007 12:35 pm
by Moonbase2
Evolution Prime wrote:Yeah they didn't send her to any good hospitals. Just the navy one in Bremerton, WA and the army one in Tacoma. I hope they find out what it is and fast. I know how bad it can be to wait.
You mean to tell me that she could've had a serious degenerative disease and they didn't send her to a real hospital? Did they have neurologists at the navy hospital? See, mine is a pretty big and busy hospital, but they don't have a cardiologist, and no neurologist either. So we get referrals offpost.

Posted:
Fri Sep 07, 2007 12:41 pm
by Evolution Prime
Moonbase2 wrote:Evolution Prime wrote:Yeah they didn't send her to any good hospitals. Just the navy one in Bremerton, WA and the army one in Tacoma. I hope they find out what it is and fast. I know how bad it can be to wait.
You mean to tell me that she could've had a serious degenerative disease and they didn't send her to a real hospital? Did they have neurologists at the navy hospital? See, mine is a pretty big and busy hospital, but they don't have a cardiologist, and no neurologist either. So we get referrals offpost.
Nope. They sent her to the Army hospital for that. They didn't refer her to a hospital in Seattle or anything like that. I was suprised they just didn't tell her to take some Motrin and give her some foot powder and tell her it was going to go away. I hate the military for their incompitence in the medical field. They said nothing was wrong with my knee and I just recently found out I had bone damage in that knee that I hurt when I was in the Navy 7 years ago. I have a friend in the Air Force and she is having problems with her hip and they are convinced she is faking it because they say they can't find anything wrong with it.

Posted:
Fri Sep 07, 2007 12:48 pm
by Moonbase2
Well, I am glad the nurse practioner (yeah, no real doc I talked to) took me seriously enough to schedule a referral and a sh*tload of bloodwork. At least today I can find out if it is Lyme Disease. That is insane, though. My son is a slow talker and they sent him to a top hospital for the MRI. Wonder why they didn't bother with your ex wife.

Posted:
Fri Sep 07, 2007 1:01 pm
by Evolution Prime
I dont know either. They probably thought they could figure it out. Appearently they didn't because she is now having it come back on her.

Posted:
Fri Sep 07, 2007 1:04 pm
by Seibertron
One of the Seibertron.com staff members had a bad bout with Lyme disease over the past few months or so. I'll send him this link to see if he wants to post about it.

Posted:
Fri Sep 07, 2007 1:34 pm
by Marty Rocket
I'm a personal trainer, a few months ago I was training a lady who has severe MS. I trained with her once a week and within six weeks her range of movement and strength increased rather well.
My point here is that if you find you're diagonsed with MS, exercising your muscles and general exercise and help you with the severe muscle spasms that occur. Your range of motion will increase, and also your strength & stamina will obviously also improve.
Good luck, I hope you find it isn't lyme disease of MS.[/i]

Posted:
Fri Sep 07, 2007 1:45 pm
by Moonbase2
I had a cousin that died from it...she was diagnosed back when there wasn't much that could be done, and the doc didn't even tell her she had it for years...by the time I met her in 1993, she couldn't do anything. At least now there are much better forms of therapy. A lot of people with MS do eventually end up somewhat disabled, but til that point a lot can be done to lessen the symptoms. At least that is what I've heard.
Re: Does anyone here have or know someone with MS or Lyme Disease?

Posted:
Fri Sep 07, 2007 4:14 pm
by sto_vo_kor_2000
Moonbase2 wrote:If so, can you tell me a little about it? I have a lot of symptoms consistent with both, though moreso with multiple sclerosis. I'm being tested for Lyme Disease and am awaiting a neurology appt. It's gotten progressively worse over the past two weeks and it's starting to become really bothersome. My entire face is numb right now, and that's a brand new symptom.

Thanks. I've had a bad month, health-wise.
Well,as u know,since we have talked often.My wife has had MS for the past 6 yrs now.So,I do have experience in this area.To put it,basically MS is an autoimmune disease. Basically,the Immune system that is suppose to fight off Viruses and diseases begins attacking cells in the body known as Mylin.The purpose of Mylin cells is to coat the nerves and control the pathways from the brain to the rest of the body.So think of it as the clear plastic over speakerwire.Since the body is eating this Mylin cover,the signals from the brain are being interrupted before getting to all the muscles in your body.Which can sometimes create weakness and numbness of body parts or exaggerated sensation which may result in huge pain.Ex a simple handshake can cause lots of pain.
To make matters worse, the byproduct of the immune system devouring the Mylin in your body creates small lesions inside of your brain stem located at the base of your skull,which left untreated,these lesions continue to grow and can cause complete loss of motor skills.Think about it like the nerves in your brain stem is like a thick intertwining rope.Thats being frayed little by little by the lesions.U can only frey a rope so much until it rips.
If u got any more questions u can ask here or PM me.

Posted:
Fri Sep 07, 2007 9:12 pm
by sto_vo_kor_2000
There are also 2 other condisions that mimic MS so let me know what the doc tells ya.

Posted:
Fri Sep 07, 2007 11:27 pm
by Cowboy Bebop
A friend of mine had lyme disease for a little while. I can't say what his symptoms were but the only time I saw him when he had it he look like absolute crap and said that anything he did hurt like hell. Best I can do for you.